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Thursday, June 6, 2013

New Heart News

So, Kiley had another cardiology appointment this morning. Jason and I knew she had been getting more and more tired lately, which the echo confirmed. Since her mitral valve is not working properly the blood has been backing up into her Left Atrium. This has caused it to grow over time. 

Each echo the cardiologist has seen it getting slowly bigger and bigger. Thankfully we can wait until after our trip but she is planning on doing a procedure called Cardiac Catheterization. 

She also is bringing Kiley's case to her team of cardiologists to do a team approach and get other expert opinions on how to proceed with her case. It is not a cut and dry situation. Her desire is to wait until Kiley's heart is at adult size to fix her mitral valve, but that is what is causing the pressure change in the atrium. 

Please pray for wisdom as the doctors work together to do the right thing. When they do the procedure above, should her coarctation need to be expanded they can balloon it as they couldn't fix it completely. When they did the surgery before they couldn't fix it 100% because the section was too long. 

If her left atrium gets too big then it will start pushing blood back into the pulmonary veins and arteries and that would lead the blood into the lungs. This would cause her body to think she has pneumonia or asthma. 

Thank you for your prayers of wisdom. Also, pray for her because she didn't like this news. Thankful for God's plans and that He is in control. I love her doctor and appreciate her working to find the best plan for Kiley.

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